As Brody gets older, I can't help but think about his vision. I absolutely have no worries about his Cochlear Implants. He is such a good implant user. He advocates for himself and loves wearing them. His possible vision loss, on the other hand, is a mystery. We have no timeline on when/how it will happen. We basically just know, through genetic testing, that someday he may start to lose his vision. To what extent and how fast is also not known. Even with this diagnosis, our family pushes forward. We know that time is not our friend so we plan to expose Brody to many things while his vision is normal. We go on trips and travel as much as possible. I hope that as Brody gets older he will have many happy memories that he can look back on.
3 years. The last 3 years have had highs and lows. I few times over these 3 years I've broken down. I would ask Katie "What will Brody do when he is older?" "Can he live by himself?" "How bad will his vision loss be?" It has made me emotional but Katie is always there to be me my rock. She let's me know that no matter what, Brody will be OK. We will be there to help him, but he will fine. For the very few low times I've had there have been uncountable highs! Brody is such an amazing little boy. I am so happy to be his Dad. I've watched him overcome all the obstacles in his path and continue to overcome the ones that show up as he gets older. I can't believe how much his Cochlear Implants have changed his life in 3 years but it has been an amazing 3 years!
I let Jordan "guest post" tonight because he is a better writer but won't ever write the posts! We celebrated Brody's processors' (who he randomly named Johnny and Wreck-It today...?) birthday. They are 3 years old! Brody was so excited! He requested party hats and candles too.
Also since I haven't posted all summer...here's a photo dump!
|First day of preschool as a 4 year old! Brody has new teachers and friends. He is loving his new class!|
|We have been walking for Usher Syndrome for the last 25 days. It ends tomorrow!|
|Along with magic, Brody is in love with anything Space. He's going to be an astronaut for Halloween and has dictated that the entire family will be different planets. We'll see!|
|First BAMA game of the season! Roll Tide!|