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Tuesday, April 18, 2017

Life Update

So two kids are a lot busier than one! This poor blog has been neglected! Sorry!

Brody is finishing up his second year of preschool. We recently has his IEP meeting. The ARC committee (representative from the district, teacher of the deaf and hard of hearing, speech therapist, his teacher, and Jordan and I) met at the end of March. Brody was at 100% on all of his speech goals. I knew this coming into the meeting. I had heard from a little birdie that they were wanting to take speech away as well. I tried my hardest to pull out any hidden goal that he might need help with. Ultimately, I found that he is age appropriate (even higher than his peers in some areas). So, I was okay with them removing speech. We are going to give him the summer "off" of therapy, then start back with private speech therapy in the fall. This is an awesome thing, but also a scary move! While we know he can do it, he is still deaf and doesn't always pick up on sounds as quick. He is great at self correcting lately though! I know he will be fine, but the Mama Bear in me still has a hard time with letting a therapy go that we've had for 4 years! He is going to keep his teacher of the deaf and hard of hearing for now. He is still working on socialization skills. We have seen such a huge improvement since Christmas break! He will go up to other kids on the playgrounds now and talk to them. He even joins in with the games they are already playing! It makes my heart happy!

Brody, Ella Jo, and I went to his spring dance. It was so much fun! It was great to see him with his friends!

We had an awesome spring break this year. As a family, we took the first weekend and went to Indianapolis. It's a great kid friendly city! We will definitely be going back again. 

We went to the Children's Museum on Saturday. If you go, make sure you check the was a member's special day, so it was PACKED! There are three floors with all different types of exhibits. Brody loved the space exhibit. You get to walk through a mock space station.  

Working on the space station
Trying to hit the right button with the astronaut gloves on

 They had a circus area (I'm pretty sure this is a traveling set.). Brody loved it, but when they had actual performers to pop out of the cannon, he decided it would be too loud and refused to take off the processors (where he wouldn't be able to hear it), so we left and missed that part.

 There were other smaller exhibits. One had scuba gear to try on. They also had an Indy car to sit in!

His (and Ella Jo's) favorite part was in the 6 and under area. He went around with Jordan while I had Ella in their super cool nursing room and the toddler area. Brody loved climbing up to the boat (something he would have been scared of even 6 months ago)!


They also had a lot of high school groups presenting their robots on each floor. The kids got to try them too! In the video, you can see that I'm talking into something. That is his MiniMic. It is a digital feed that goes straight to his processors. It helps him hear better in noisy situations. He loves it!

Saturday night, we went to Pizza King. It is just your everyday pizza place, but they have a train that brings the drinks to your table. Brody thought it was the coolest concept ever. He asks pretty much daily to go back!

Sunday, we went to the Indianapolis Zoo. It is a smaller zoo, but it is almost all pretty much updated. And...they have a really cool dolphin show.

Waiting for the dolphin shoe to start...Ella Jo passes out shortly after this and slept through the entire show!

They had a really cool (and big) snake exhibit!

The rest of the week, we spent the three of us around Kentucky (Jordan had to go back to work :( ). Brody went to the dentist for the first time! He did awesome!!

We went to the Louisville zoo and met up with my friends from work and their children.

We went to our favorite park (Beckley Creek Park in Louisville). Brody was amazing me with how he was making friends! We went on a little hike with one little boy too.


We went to Lexington to the Explorium. I'm sure at one time it was great (the website made it sound amazing), but it needs a lot of love and work! Brody still enjoyed it. Ella did until she hit that nap wall!

painting with balloons

Hope everyone had a great Easter! We sure did!

Friday, September 16, 2016

It doesn't feel like 3 years

The 3 years.  Weekly trips to Lexington.  Therapy sessions multiple times a week.  Conferences. Conventions. Our journey has been filled with experiences and opportunities.  I am thankful that Gail (Katie's mom) video taped Brody from pretty much the moment he came home from the hospital.  Without her videos, I would never remember how far Brody has come.  As I sit at the dinner table and have a "serious" conversation with my 4 year-old, I have to hide my laughter as he tells the most ridiculous story or excuse of the day.  I wish that I could consciously be thankful for his Cochlear Implants everyday, but the fact is they have become part of him.  He has even started putting the batteries on the charger by himself and putting the processors in his dryer!  I didn't know if I would be comfortable with Brody handling his processors until he was maybe...10?  He is 4; 4 years-old and already understands the importance of them; what they do; to let us know if they are not working.  I obviously remember this day, 3 years ago, when he was activated.  All he did was point toward the light on the ceiling when he heard a sound.  It was such a non-eventful thing, but it meant the world to me.  He finally had the ability to listen for the first time in his life! From that moment on, Brody hasn't looked back and has blown us away!

As Brody gets older, I can't help but think about his vision.  I absolutely have no worries about his Cochlear Implants.  He is such a good implant user.  He advocates for himself and loves wearing them.  His possible vision loss, on the other hand, is a mystery.  We have no timeline on when/how it will happen.  We basically just know, through genetic testing, that someday he may start to lose his vision.  To what extent and how fast is also not known.  Even with this diagnosis, our family pushes forward.  We know that time is not our friend so we plan to expose Brody to many things while his vision is normal.  We go on trips and travel as much as possible.  I hope that as Brody gets older he will have many happy memories that he can look back on.

3 years.  The last 3 years have had highs and lows.  I few times over these 3 years I've broken down. I would ask Katie "What will Brody do when he is older?" "Can he live by himself?" "How bad will his vision loss be?"  It has made me emotional but Katie is always there to be me my rock.  She let's me know that no matter what, Brody will be OK.  We will be there to help him, but he will fine.  For the very few low times I've had there have been uncountable highs!  Brody is such an amazing little boy.  I am so happy to be his Dad.  I've watched him overcome all the obstacles in his path and continue to overcome the ones that show up as he gets older.  I can't believe how much his Cochlear Implants have changed his life in 3 years but it has been an amazing 3 years!


I let Jordan "guest post" tonight because he is a better writer but won't ever write the posts! We celebrated Brody's processors' (who he randomly named Johnny and Wreck-It today...?) birthday. They are 3 years old! Brody was so excited! He requested party hats and candles too.

Also since I haven't posted all's a photo dump!

We stopped at Lake Michigan on the way to my cousin's wedding this summer in Minneapolis. 

Brody loves his little sister. Ella loves her brother even more!

We took in a few Louisville Bats baseball games this summer.
First official family of 4 picture. 

Pure joy together!

First day of preschool as a 4 year old! Brody has new teachers and friends. He is loving his new class!

Brody is obsessed with magic because of watching it on America's Got Talent. We got to see a magic show at the Kentucky State Fair. He loved it until they cut the girl in half. He freaked out because he thought there was going to be a ton of blood. He was so amazed when there wasn't any. ;)

We have been walking for Usher Syndrome for the last 25 days. It ends tomorrow! 

Along with magic, Brody is in love with anything Space. He's going to be an astronaut for Halloween and has dictated that the entire family will be different planets. We'll see!  

First BAMA game of the season! Roll Tide!